Assessing the Quality and Reliability of Rheumatoid Arthritis Exercise Videos on TikTok and YouTube

Tugba Ozudogru Celik; Nadide Koca

doi:10.58600/eurjther1967

Authors

Tugba Ozudogru Celik Department of Physical Medicine and Rehabilitation, Ankara Bilkent City Hospital, University of Health Sciences Turkey, Ankara, Türkiye https://orcid.org/0000-0003-0528-149X
Nadide Koca Department of Physical Medicine and Rehabilitation, Ankara Education and Research Hospital, University of Health Sciences Turkey, Ankara, Türkiye https://orcid.org/0000-0002-0839-5700

DOI:

https://doi.org/10.58600/eurjther1967

Keywords:

Rheumatoid arthritis, exercise, social media platforms, YouTube, TikTok

Abstract

Objective: An autoimmune condition that frequently affects the synovial joints and other organ systems is called rheumatoid arthritis (RA). Social media platforms are increasingly used to access health-related information. The purpose of this study is to evaluate the RA exercise videos on YouTube and TikTok in terms of their accuracy, quality, and content-specificity.

Methods: The term “rheumatoid arthritis exercise” was sorted on YouTube and TikTok on 25 July 2023. To simulate an average search query, the keyword by "top" results on TikTok and by "relevance" on YouTube were used. The Journal of American Medical Association (JAMA), DISCERN, and Global Quality Scale (GQS) scoring systems were used to evaluate the information's quality and accuracy. Additionally, the videos' attributes and sources were examined.

Results: Fifty videos from each platform were included out of the 214 videos that were evaluated. YouTube videos had more views (35438 vs. 5989, p<0.001), likes (871 vs. 199, p<0.001), and uploads by doctors (34% vs.14%, p<0.001) in addition to being longer (12.12 minutes vs. 0.42 minutes, p<0.001). YouTube videos were also significantly more likely to receive high DISCERN reliability, quality and overall scores (21,5(11) vs. 15(6), 15(9) vs. 9(4) and 40,5(21) vs. 28(9), p<0.001, respectively). In addition, YouTube videos had higher GQS scores and JAMA scores (24% vs. 4%, 2(1) vs. 1(1), p<0.001, respectively).

Conclusion: RA exercise related videos are more likely to have higher quality and accuracy on YouTube than on TikTok. It is important to provide videos by healthcare professionals to guide patients about accurate and high-quality health-related information.

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References

Smolen JS, Aletaha D, McInnes IB (2016) Rheumatoid arthritis. Lancet. 388(10055):2023-2038. https://doi.org/10.1016/S0140-6736(16)30173-8

Myasoedova E, Davis J, Matteson EL, Crowson CS (2020) Is the epidemiology of rheumatoid arthritis changing? results from a population-based incidence study, 1985-2014. Ann Rheum Dis. 79(4):440–444. https://doi.org/10.1136/annrheumdis-2019-216694

Wu D, Luo Y, Li T, Zhao X, Lv T, Fang G, Ou P, Li H, Luo X, Huang A, Pang Y (2022) Systemic complications of rheumatoid arthritis: Focus on pathogenesis and treatment. Front Immunol. 13:1051082. https://doi.org/10.3389/fimmu.2022.1051082.

Roodenrijs NMT, Hamar A, Kedves M, Nagy G, van Laar JM, van der Heijde D, Welsing PMJ (2021) Pharmacological and non-pharmacological therapeutic strategies in difficult-to-treat rheumatoid arthritis: a systematic literature review informing the EULAR recommendations for the management of difficult-to-treat rheumatoid arthritis. RMD Open. 7(1):e001512. https://doi.org/10.1136/rmdopen-2020-001512

Hurkmans E, van der Giesen FJ, Vliet Vlieland TP, Schoones J, Van den Ende EC (2009) Dynamic exercise programs (aerobic capacity and/or muscle strength training) in patients with rheumatoid arthritis. Cochrane Database Syst Rev. 2009(4):CD006853. https://doi.org/10.1002/14651858.CD006853.pub2

Azeez M, Clancy C, O'Dwyer T, Lahiff C, Wilson F, Cunnane G (2020) Benefits of exercise in patients with rheumatoid arthritis: a randomized controlled trial of a patient-specific exercise programme. Clin Rheumatol. 39(6):1783-1792. https://doi.org/10.1007/s10067-020-04937-4

Fox S, Duggan M (2013) Health online 2013. http://www.pewinternet.org/2013/01/15/health-online-2013/. Accessed Date 2013

Zhao Y, Zhang J (2017) Consumer health information seeking in social media: a literature review. Health Info Libr J.34(4):268-283. https://doi.org/10.1111/hir.12192

Kimmerle J, Bientzle M, Cress U (2014) Personal experiences and emotionality in health-related knowledge exchange in Internet forums: a randomized controlled field experiment comparing responses to facts vs personal experiences. J Med Internet Res. 16(12):e277. https://doi.org/10.2196/jmir.3766

Basnet B, Bhattarai S, Khanal A, Upadhyay M, Baruwal A (2019) Quality of YouTube patient information on prostate cancer screening. Proc (Bayl Univ Med Cent). 32(3):361-363. https://doi.org/10.1080/08998280.2019.1594493

Kocyigit BF, Akaltun MS (2019) Does YouTube provide high quality information? Assessment of secukinumab videos. Rheumatol Int. 39(7):1263-1268. https://doi.org/10.1007/s00296-019-04322-8

McCashin D, Murphy CM (2023) Using TikTok for public and youth mental health - A systematic review and content analysis. Clin Child Psychol Psychiatry. 28(1):279-306. https://doi.org/10.1177/13591045221106608

Mohsin M (2023) 10 TikTok statistics that you need to know in 2023 (infographic). Available : https://www.oberlo.com/blog/tiktok-statistics. Accessed 12 Aug 2023

Basch CH, Donelle L, Fera J, Jaime C (2022) Deconstructing TikTok videos on mental health: cross-sectional, descriptive content analysis. JMIR Form Res. 6(5):e38340. https://doi.org/10.2196/38340

Özkent MS, Kılınç MT (2023) Female urinary incontinence on TikTok and YouTube: is online video content sufficient? Int Urogynecol. 34(11):2775-2781.https://doi.org/10.1007/s00192-023-05607-0

Song S, Park KM, Phong K, Kim EA (2022) Evaluating the Quality and Reliability of Gender-affirming Surgery Videos on YouTube and TikTok. Plast Reconstr Surg Glob Open. 10(7):e4443. https://doi.org/10.1097/GOX.0000000000004443

Gupta AK, Polla Ravi S, Wang T (2023) Alopecia areata and pattern hair loss (androgenetic alopecia) on social media - Current public interest trends and cross-sectional analysis of YouTube and TikTok contents. J Cosmet Dermatol. 22(2):586-592. https://doi.org/10.1111/jocd.15605

Tolu S, Yurdakul OV, Basaran B, Rezvani A (2018) English-language videos on YouTube as a source of information on self-administer subcutaneous anti-tumour necrosis factor agent injections. Rheumatol Int. 38(7):1285-1292. https://doi.org/10.1007/s00296-018-4047-8

Charnock D, Shepperd S, Needham G, Gann R (1999) DISCERN an instrument for judging the quality of written consumer health information on treatment choices. J Epidemiol Commun Health. 53:105–111. https://doi.org/10.1136/jech.53.2.105

Chen Z, Pan S, Zuo S (2022) TikTok and YouTube as sources of information on anal fissure: A comparative analysis. Front Public Health. 3;10:1000338. https://doi.org/10.3389/fpubh.2022.1000338

Bernard A, Langille M, Hughes S, Rose C, Leddin D, Veldhuyzen van Zanten S (2007) A systematic review of patient inflammatory bowel disease information resources on the World Wide Web. Am J Gastroenterol. 102(9):2070-7. https://doi.org/10.1111/j.1572-0241.2007.01325.x

Silberg WM, Lundberg GD, Musacchio RA (1997) Assessing, controlling, and assuring the quality of medical information on the Internet: Caveant lector et viewor—Let the reader and viewer beware. JAMA. 277(15):1244-1245.

Madathil KC, Rivera-Rodriguez AJ, Greenstein JS, Gramopadhye AK (2015) Healthcare information on YouTube: A systematic review. Health Informatics J. 21(3):173-94. https://doi.org/10.1177/1460458213512220

Wang Y, McKee M, Torbica A, Stuckler D (2019) Systematic Literature Review on the Spread of Health-related Misinformation on Social Media. Soc Sci Med. 240:112552. https://doi.org/10.1016/j.socscimed.2019.112552

Zengin O, Onder ME (2021) Educational quality of YouTube videos on musculoskeletal ultrasound. Clin Rheumatol. 40(10):4243-4251.https://doi.org/10.1007/s10067-021-05793-6

Ozsoy-Unubol T, Alanbay-Yagci E (2021) YouTube as a source of information on fibromyalgia. Int J Rheum Dis. 24(2):197-202. https://doi.org/10.1111/1756-185X.14043

Rodriguez-Rodriguez AM, Blanco-Diaz M, Lopez-Diaz P, de la Fuente-Costa M, Sousa-Fraguas MC, Escobio-Prieto I, Casaña J (2021) Quality Analysis of YouTube Videos Presenting Pelvic Floor Exercises after Prostatectomy Surgery. J Pers Med. 11(9):920. https://doi.org/10.3390/jpm11090920

Babar M, Loloi J, Patel RD, Singh S, Azhar U, Maria P, Small A, Watts K (2022) Cross-sectional and comparative analysis of videos on erectile dysfunction treatment on YouTube and TikTok. Andrologia. 54(5):e14392. https://doi.org/10.1111/and.14392